Management of Patients with Neuromuscular Disease

Management of Patients with Neuromuscular Disease

By John R. Bach, MD, Professor of Physical Medicine & Rehabilitation, Vice Chairman, Department of Physical Medicine & Rehabilitation, Professor of Neuroscience, Codirector, Jerry Lewis Muscular Dystrophy Association Clinic, UMDNJ--The New Jersey Medical School, Newark, New Jersey


Section 1: General Evaluation and Management Concerns
1. Disease Assessment and Evolution
2. Medical Therapies and Research
3. Nutrition
4. Swallowing and Gastrointestinal Concerns
5. Cardiac Management

Section 2: The Physical Intervention Stages
6. Stage 1: The Ambulatory Stage
7. Stage 2: Stage of Loss of Ambulation
8. Conventional "End-Stage" Management

Section 3: The Stage of Prolonged Quality Survival
9. The Physiological Basis of Aiding Respiratory Muscles
10. Noninvasive Respiratory Muscle Aids, Intervention Goals, and Mechanisms of Action
11. Respiratory Muscle Aids: Patient Evaluation, Respiratory Aid Protocol, and Outcomes
12. Pediatrics Respiratory Management
13. Quality of Life and Ethical Issues